The Match

The Match

"savior Siblings" and One Family's Battle to Heal Their Daughter

Book - 2010
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Random House, Inc.
On her first day on earth, laboring to breathe under an oxygen tent, Katie Trebing underwent a blood transfusion that would become the first of an expected lifetime of them. Diagnosed with a rare form of anemia that prevents bone marrow from producing red blood cells, Katie would require a transfusion every month. Without it, she would die. But even with a steady supply of red blood cells from donors, her prognosis was not encouraging. Eventually, doctors warned, iron from repeated transfusions would accumulate in her heart and liver, potentially destroying her organs by the time she reached forty.

Faced with their daughter's devastating prognosis, Stacy and Steve Trebing made the difficult decision to pursue the only known cure for Diamond Blackfan anemia: a bone marrow transplant from a genetic match. Using preimplantation genetic diagnosis (PGD) and in vitro fertilization, they would create a "savior sibling" for Katie, a complex process rife with setbacks and pitfalls. Only then could she undergo the perilous procedure that might save her life.

In The Match, Pulitzer Prize-winning journalist Beth Whitehouse tells the Trebing family's story, from the onset ofKatie's troubling health complications to the birth of her new brother and the culmination of her bone-marrow transplant. Whitehouse follows the Trebings each step of the way as they make the nail-biting decisions to create a genetically matched sibling and proceed with the risky transplant that could kill Katie rather than save her. With the family's dramatic and emotional story as an entry point, Whitehouse delves head-on into the murky bioethics surrounding PGD: Is it ethical to create a life for the purpose of saving another? Who will protect the medical interests of the "savior sibling" created by scientific manipulation? And who will object if the child is later called upon to donate, say, an organ?

Whitehouse asks these questions and many others, seeking answers from doctors and ethicists who deal with such matters daily. She explores the controversial use already made of PGD to select gender and the future possibility to choose traits such as eye color and even intelligence. The Match is a timely and provocative look at urgent issues that can only become more complex and pressing as genetic and reproductive technologies advance.

Houghton
On her first day on earth, Katie Trebing underwent a blood transfusion that would become the first of an expected lifetime of them. Diagnosed with a rare form of anemia, she would require a transfusion every month—or she would die. But even with a steady supply of red blood cells, iron would eventually accumulate in her heart and liver, potentially destroying her organs by the time she reached forty.

Faced with their daughter’s devastating prognosis, Stacy and Steve Trebing made the difficult decision to pursue the only known cure for Diamond Blackfan anemia: a bone marrow transplant from a genetically matched sibling. Using preimplantation genetic diagnosis (PGD) and in vitro fertilization, they would create a "savior sibling" for Katie, a lengthy and complex process rife with setbacks and pitfalls.

Using the Trebings’ dramatic and emotional story as an entry point, award-winning journalist Beth White-house delves into the complex bioethics of PGD, asking every important question, from whether it is defensible to select embryos for certain traits, to who will protect the interests of the "savior sibling" created by scientific manipulation. The Match is a provocative look at bioethical problems that are certain to become more pressing.



Baker & Taylor
The Match chronicles a family's quest to cure their daughter’s Diamond Blackfan anemia. Faced with a devastating prognosis, Stacy and Steve Trebing made the difficult decision to pursue the only known cure for the disease: a bone marrow transplant from a genetically matched sibling. Using preimplantation genetic diagnosis and in vitro fertilization, they would create a "savior sibling" for her, a lengthy and complex process rife with setbacks and pitfalls.

Book News
In this expansion of her five-part Newsday series, Whitehouse, a journalist who teaches at Columbia U., details Stacy and Steve Trebing's decision to create a baby selected as an embryo that was a genetic match for their child suffering from Diamond-Blackfan anemia, a fatal disease that prevents bone marrow from producing red blood cells. She describes their journey from their daughter's diagnosis, to the baby's conception, to the bone marrow transplant that saved their daughter's life, also discussing the ethical issues involved with "savior siblings". Annotation ©2010 Book News, Inc., Portland, OR (booknews.com)

Baker
& Taylor

Chronicles a family's quest to cure their daughter's Diamond Blackfan anemia by creating a genetically matched sibling through preimplantation genetic diagnosis and in vitro fertilization.

Publisher: Boston : Beacon Press, c2010
ISBN: 9780807072868
0807072869
Branch Call Number: 92 T711w 2010
362.19641 W5876m 2010
Characteristics: xi, 255 p. ; 24 cm

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